By Clare Evans MBE, first
director of Wiltshire Users Network, 1991-1997
Co-production! It is a comparatively new word in common use in social care – 25 years ago it is what we called user- controlled user involvement - it stood at the top of the ladder of user involvement for those of us who used services and valued involvement.
Why did we value it then and what similarity is there with co-production?
There were one or two important
factors we valued and fought for as we set up Wiltshire Users Network (WUN), a
generic user - controlled network of long term users of Health and Social Care,
in November 1991 in response to the new NHS and Community Care Act which first
enshrined the terms “user” and “carer”. Although these terms later came to
restrict people, they helped us then, define a new identity for ourselves to
gain a voice and move beyond “professionals know best” to involvement on equal
terms.
We learnt that by building our
own organisational culture and values, we could gain confidence and negotiate involvement from the start
on our terms. As well as agenda-setting, we could prepare adequately and
collectively to take forward the views of many “service users”. Of course,
funding for WUN was crucial to establish good practice in paying fees and
travelling expenses to service users, to sit alongside professionals to plan
and monitor services. A negotiated service agreement with the local authority
gave us the flexibility we needed and we began our involvement! Once, I counted
64 different ways we were involved in health and social care!
So was it all worthwhile?
We recognised we were there for
the long term - to change the culture of social care as well as direct service
provision. Ultimately the growth in Independent Living, and the legalisation of
Direct Payments gave the flexibility many sought. Undoubtedly the shared
understanding of co-production good practice has brought equity but how much
happens at local level? Sadly, austerity has changed the landscape in recent
years but whatever the financial climate, undoubtedly best practice comes from co-produced
social care.
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