Co-production Week 2019

Co-production Week 2019

Tuesday, 16 July 2019

Co-produced films about patient engagement


By Nicole Kirby, Macmillan Engagement Lead, North of England

At Macmillan Cancer Support we’re about to launch two short films about the benefits of engaging people affected by cancer in the development, design and delivery of cancer services.  The films  - one aimed at people affected by cancer and one at professionals - are the culmination of over a year’s work with a group of patients, carers and healthcare staff, who want to share their enthusiasm for engagement with others.


Whilst the initial idea for the films came from myself and a colleague, the work has been very much a co-production approach, bringing people who’ve had a cancer diagnosis & those that care for them together with cancer professionals, to shape the project with their knowledge and experience.

Together they:
  • Agreed key messages & audiences
  • Appointed a video producer & came up with a concept
  • Wrote the scripts & starred in the films. 


The process
The work has been as much about process as product, so my role has been facilitating and supporting the group; allowing time for the group to get to know one another and come to shared understanding  about the work, supporting individuals to be involved, and helping to ensure they stay firmly in control.  Fundamental to this is the concept of power sharing; treating those with lived experience as the experts they are, and putting them in the driving seat alongside cancer professionals.



The benefits of co-production
Taking a co-production approach for this work has taken a lot of time and effort, but I think it’s worth it – the product is the result of the group’s experience, skills and commitment, and group members have commented that they’ve found the process ‘empowering’ and ‘patient led’ and that they are now ‘passionate about engagement’.  

The films will shortly be available on Macmillan’s website and Youtube/Vimeo channels.  The group hope the films will encourage other people to value engagement the way that they do, because (in their words), ‘Together, our combined expertise can make the world of difference.’   


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